Tuesday, April 10, 2018

THE BIG NEWS!

Yes, it's official.  Maliyah is receiving a kidney this summer!  This journey began on February 26, 2002, when we were born conjoined and sharing one kidney. Thankfully, our mom (Erin) was able to donate her kidney to Maliyah when Kendra got the shared one at separation.

But as many of you know, Maliyah's road to complete recovery hasn't been quite as simple as that first transplant.  For several years, our mom's kidney did well.  Slowly, the lab results started to look less promising.  It was determined the kidney was in T-Cell Rejection.  The initial treatments didn't work, but finally a treatment known as IVIG allowed gradual improvement.  Soon after, in March of 2016, Maliyah had a heart surgery which did not go as planned, puncturing her heart.

The stress on the rest of her body as her heart struggled led to complete kidney failure.  Two years of waiting on the kidney registry and repetitious dialysis treatments have followed.  For two years, our family has waited for Maliyah's kidney.

On April 2, just last Monday, we received the news.  Maliyah is getting her kidney this summer*, and we could not be more thrilled.

There are thousands more on the registry for an organ donation though, and many of them have not yet received a donor.  Maliyah's kidney will change our lives so much-- you, too, are capable of making this kind of change in somebody else's life.  Organ donation influences so much more than the person who is receiving the actual transplant.  Because somebody decided to give, Maliyah has been given the gift of life and energy, and each of our family members and friends are forever thankful.

"I feel like I will be free," Maliyah said after receiving the news.  "I will be able to be with my friends and family without dialysis being in the way.  I will get to swim, and I'll have more energy!"

Thank all of you for your support during our journey over the last two years and also during the last sixteen years.  Our hearts are full as we share this news with you, our biggest cheerleaders.  Here's to this triumph, and to many more to come!

As always, we hope you will continue to stick with us over the next few months as we tell our story.
Love,
Kendra & Maliyah
~The Herrin Twins~


 *We do not want to be contacted by news stations or other organizations regarding this topic.  We would like to maintain the privacy of the donor throughout this process.

Monday, April 9, 2018

Spring Break + BIG NEWS

Spring break was this past week!  We had so much fun together this week, and received some AMAZING news (see bottom of post).  

Fish at the Aquarium
Maliyah's Manicure
We went to an interactive aquarium as part of our break.  Maliyah even had a fish manicure there, where garra rufa fish smooth out a person's hands.  We got to feed exotic tropical birds as we sat in their enclosure, feed stingrays, and look at dozens of incredible marine species.  It was definitely one of the highlights of the break!

We also went to the recreation center with a couple of our friends and swam in the pool.  We used diving flippers to swim extra fast and raced on a floating obstacle course, then relaxed in the hot tub for a while.  Later, we dried off and ate a few snacks.

Feeding Birds at the Aquarium
At the beginning of the week, we got a bit of a scare when one of our best friends, Anabelle, was in a rollover car accident.  We are so thankful she and her family are all okay.  (See pictures below)
We went to dialysis with Anabelle on Friday, which was fun!  We played a few board games and built an elaborate castle with kinetic sand while we were there.  Our family went to the temple and did service a few hours later, which was a really rewarding and fulfilling experience.  Helping others is always a great way to feel happy!

On Friday night, we went to IHOP for dinner.  Later that night, two of Courtney's friends came over with their babies.  All three babies were under 4.5 months old-- we were in heaven with all the adorable babies! 

THE BIG ANNOUNCEMENT will be released tomorrow at 4 pm (Mountain Time Zone) on this blog.  Be sure to watch for it!  We are beyond thrilled to share this news with you!
Until Tomorrow,
Kendra & Maliyah
~The Herrin Twins~